Everyone on the Edge #2 – Carys’ Story: Solitude

It’s here! Everyone on the Edge has been a project I’ve wanted to do for a long time. I am so overwhelmed with the response I have had and hope that this series will encourage more of you to open up. It’s an absolute honour to read and share your stories and help people recognise that truly, everyone really is on the Edge.

I’d like to introduce you to my second guest, Carys. I met Carys through work, she had told me that she had read my blog and that it had resonated with her at a truly hard time. We have never been in constant contact but we have always had a mutual understanding of being on the edge. My biggest regret especially when reading this is how lonely this place is, and how much I feel I could have helped (whether I could or couldn’t), reading things like this make you feel helpless as a friend. She is so strong though, and that is represented in the words she has used. Strength doesn’t come naturally to everyone, but it’s clear this girl has so much of it. This is a brave, extremely honest and open account of Carys’ struggles. Proud of her. The floor is yours, Carys, darling…

It’s all I have, the one constant in my life. I was first put on anti depressants at the age of 18, and over the past 7 years my collection has increased vastly. The effects of these medications are something that people don’t ever appreciate or understand. To me I am fighting a lose lose battle; my life without them is completely unbearable. All of my emotions are completely unpredictable. I either feel completely numb and like a vacant shell of a person, or, to quote the vaccines “it makes my head feel like a nightclub” its overbearing, loud and intense.

I have always been ashamed of my mental health, surrounded by people that will do their best to understand but all the while can’t. They haven’t experienced the difference between feeling depressed, feeling anxious and real chronic depression and anxiety disorder. The truth is they are so different, I don’t have an escape, these illness’ manifest into every aspect of my life. 

After working in the prison service I cut down a man that was hanging, after this I was first diagnosed with PTSD. Following that incident I was off work, unable to leave my bedroom and function, everything became too overwhelming. I felt responsible for the death of a man I had become to know well. I would replay the event over and over in my head trying to work out what more I could have done, how I could have been there for him when he felt he had no other option. 

As my mental health became progressively worse, I felt suicidal. It was in this period that I walked past the man I believed to have died, sat in the street begging for money. He was alive, and more so he was homeless. I sat and cried, watching him from afar, refusing to move because now I was experiencing the same emotions all over again but in a completely different way. Guilt. Itwas my fault he was sat there, cold and alone. I finally understood how he had felt, the desire to die and end all of the pain that life has, I had been selfish and taken that away from him. I had forced him to continue living a life that he didn’t want to do. Every day I felt anger towards the people that I loved and the people that loved me because I wished I didn’t have them to think about. 

I don’t know how long I had been stockpiling my medication for but I remember taking it everywhere with me. I took it up to London with me when I went to celebrate my friends birthday. I look at the pictures and you can see me smiling and laughing, I look so happy. Little did everyone know I was smiling because I knew I soon wouldn’t have to. When I got home I drove to Tesco car park, I sat and became frustrated that I hadn’t packed a bottle of wine to take my medication with. I popped out each pill… it took forever. Then I put my headphones in and walked to the place I had planned to die. I didn’t want family or friends to find me, I had worried about the repercussions that it would have on someone else’s life, but I tried to tell myself that a dog walker finding someone passed out wouldn’t be too traumatic. I laid in the cold looking up at the stars and wondered how long it would take. 

The next thing I remember is waking up in hospital. I was terrified because I was having hallucinations; Ipanicked thinking that I was going to be experiencing these things forever. My mum and boyfriend at the time sat by my side as I cried and begged the doctors to let me go home. I made them believe I wasn’t going to do it again, that I would get therapy and look after myself, but really all I felt was disappointment that it hadn’t worked. Over time things did improve, I was able to get a new job and I thought that my mental health would be something that I managed. 

I now know that to be something that isn’t true. I can’t manage it, it manages me, it has control over me. Whatever happens in life, change is one thing I can rely on. Whether that is change of bad to good or good to bad, nothing is ever constant. 

Then there was the change.  A friend at work flagged it up to our manager and before I knew it I was being taken to A&E by a manager, I sat in the waiting room wondering what the point was, what they could possibly do to help me, I had no faith in any mental health services (largely due to being sent home after a suicide attempt with no support in place). After two hours I walked out, frustrated and tired of waiting, my manager then spoke to the staff and they agreed to see me and I went back in to the waiting room. Within 10 minutes I was back outside, being dropped home with leaflets in hand. I can’t tell you how often I have been asked “do you have the hotline numbers for if you’re in crisis?” Yes- I have them. No- I wont ever call. I don’t doubt that they are of service to some people, but I felt I was beyond the point of return, yet again, I was just waiting for my moment. 

This time I was better prepared, I had saved over 300 tablets, a beautiful concoction of anti depressants and anti psychotics, but most importantly- paracetamol. I had remembered how the doctor has previously told me that is what had caused me the most damage. I also had already taken each pill out of the packet and stored them in bottles so they would be easier to consume. Unfortunately it was still anything but easy, I had always been the kind of person that could swallow tablets with ease, but forcing down hundreds while your body is gagging and your mouth is dry with the powder is painful. It took forever, handfuls at a time I gulped them down trying to think of how it would all soon be over. I felt happy. It was a weight lifted off my shoulders. I didn’t have the stars to look at this time but I curled up into my duvet. Passed the point of caring who found me, this time I knew that it was something I had to do for me.

People will always say to others that sometimes you need to be selfish, you need to focus on yourself and prioritise yourself. This is such a damaging thing to say to somebody who is suicidal, because the only thing that was stopping me was the fact I was thinking of others, the effect it would have on them. Although I knew people would be hurt, I knew I had to do it for myself, I deserved the comforting peace of death.

Failure, a feeling I was familiar with, but this hit me hard. How, how did it not work, how had I survived again? Apparently the doctors wondered the same thing, as they had told my mum to go to the hospital and say her goodbyes to me. Several days later I finally woke up in intensive care, in agonizing pain. My whole body was swollen, I struggled to breathe and all down my throat felt like sandpaper. The hallucinations started again, seeing people that weren’t there, hearing things that nobody else could hear. Again, all I wanted was to go home, but I wasn’t even able to get up to use the toilet. I was approached and told that they wanted me to be discharged to a mental health hospital. All I could think was, no, surely not, I’m not like the people that are sectioned into those places. For some reason I felt like I wasn’t that unwell, I wasn’t mentally ill, I just wanted to die. I believed that to be completely different. As if that made me better than the people who suffered in different ways. I regret that now, I know that I should have gone there. Instead I was discharged under the care of the crisis team.

Over the next 8 months I saw psychiatrist after psychiatrist, had assessment after assessment and have finally started therapy. I still feel numb, and my head still feels like a nightclub, but I have a better understanding of that, this is because I have EUPD. Although I feel alone, I am not alone, I am one of many that suffer, I am on the edge with Ellen.

If you wish to contribute to Everyone on the Edge, please send your piece along with a picture to ellenontheedge@gmail.com

Everyone on the Edge #1 – James’ Story: Don’t Give Up

It’s here! Everyone on the Edge has been a project I’ve wanted to do for a long time. I am so overwhelmed with the response I have had and hope that this series will encourage more of you to open up. It’s an absolute honour to read and share your stories and help people recognise that truly, everyone really is on the Edge.

I’d like to proudly introduce my first guest, James. James is an inspiration to me, we crossed paths almost a year ago now after finding common ground through our struggles. He is the founder of Walk and Talk 4 Men, a group that offers support through regular meet ups in the Essex area. The group encourages men to open up, have a chat and get outside and has been wildly successful. Whilst having spoken honestly about our mental health to each other, this piece includes a story that I wasn’t aware of. It’s brave, honest and raw and encourages us all, not to give up. Thanks James, the floor is yours…

That gut wrenching feeling of disbelief at being back at the same undertakers, at the same crematorium, speaking with the same funeral directors. Like Groundhog Day, we had already done this, just months ago. Once again having to choose another coffin and create another eulogy and choose more funeral music. Why was my family being punished? What had we done to deserve this? The heartache and pain was unbearable, I missed my mum so much and had just spent the previous 6 months grieving her and spiting cancer for taking her away at the young age of 60. But now this, my beautiful nephew, just 10 years old, killed by a brain aneurysm.

I could not comprehend what was happening, so many questions that can never be answered. I didn’t know what to do, how to be or how to act. I didn’t know how to grieve. All I knew was that I wanted the pain to stop, I wanted my old life back, with the two missing key components back in it. My mum Carole and my nephew Jasper. To hear the word “uncle Jamesy” again and to say the words “mum I love you” out loud again. Simple things that I took for granted and miss every single day.

The physical effects came first, dry skin, mouth ulcers, large lumps appeared on my scalp, very painful cyst like lumps. I found that I couldn’t sleep and the little broken sleep I did get I had started to grind my teeth and would wake up with a sore jaw, feeling like I had been punched in the face. My weight fluctuated like a yo-yo, either not eating at all or binging on junk food. 

Alcohol I thought was my friend, it helped me escape my reality, sometimes it even helped me forget for a short time, but it wasn’t my friend at all, it was adding to my depression. Instead of talking about my feelings I’d drown them with drink and I’m ashamed to say drugs.

I was self-destructing and didn’t care, my life was on a downward spiral of despair and self loathing. It’s all still such a blur. I can’t say I wanted to die but I didn’t particularly care about living. My friends knew of my bereavement but had no clue of the extent of my unhappiness because I wouldn’t tell them or show them how I felt. I wore a mask when around them. I felt isolated and alone, ashamed and a burden. I felt like I’d let everyone down including my mum and nephew.

I wore a permanent mask around others, a “brave face” mask. I couldn’t hold down a relationship and I hated my job. My work life became exhausting due to the fact I was constantly putting on the mask everyday which was getting heavier and heavier to carry. I was in a constant dark place, depressed, tired, no aspirations or desires, I wanted to give up. 

One day not long after the second year anniversary of my mum’s passing, I sat at my desk at work and wanted to just pick up the PC monitor and throw it throw out of the window. I clenched my fists and went to pick up the monitor, then I just cried and sat back down and sobbed. I’d finally broken. I couldn’t take anymore, I couldn’t hold in my suppressed feelings anymore. I couldn’t go on like this. I stood up, walked out of that office and went straight to my doctors. I vividly recall how soft and attentive the GP became when I started opening up, and my feelings and thoughts poured out of me as well as the tears. She listened to me, for the first time someone was just listening, not judging or trying to give their opinion. This calmed me down and helped me relax. I was prescribed antidepressants, something I had been avoiding but they helped me get back on track. The doctor was very informative about the meds and the side effects, they also advised on the importance of healthy eating daily and drinking plenty of water.

I started seeing a grief counsellor and discussing my grief, depressive feelings, and my nephew and mother’s deaths. I started taking control of my life. Over time I reduced my alcohol intake and stopped smoking and taking drugs completely and I started talking more. It was difficult especially around my family but gradually became easier. This was the start of my recovery journey, I’m still grieving and I still have down days, but I feel I’m winning. I feel I’m more equipped to deal with tough days when my mental health needs looking after. I now know to avoid alcohol, I now know how important sleep is, as well as healthy eating and exercise. Even if it’s just a walk or a yoga class.

In March 2019 I started a support group for men and their mental health. I called it Walk&Talk4Men. We meet up and talk about our mental fitness and feelings. We meet in country parks, get some fresh air, walk and talk. It’s that simple. By turning my pain into passion I am now actively helping others by giving them a safe, non-judgmental place to talk about their feelings. I’m very proud of this group and the brotherhood it is forming.

In 2019 I became an ambassador for the worlds leading men’s health charity, Movember. My biggest achievement to date, I campaign for helping men live longer with my fellow Mo Bros and Mo Sisters. I am extremely proud of myself and I know that my mum and Jasper would be too.

I still have my off days but feel I’m better equipped to deal with them. I am no longer fighting with my mentality and proactiveness.  I try every day to project positivity, for the first time in years I’m career driven, focussed, determined and living my life.

No matter how bad things are, please don’t give up, you can still bounce back and achieve your dreams. Anything is possible no matter what you’ve been through or going through, things can only improve when you are at rock bottom, there is always light at the end of the tunnel. Keep going – you’ve got this.

James Mace

http://www.walkandtalk4men.com/

If you wish to contribute to Everyone on the Edge, please send your piece along with a picture to ellenontheedge@gmail.com