Everyone on the Edge #1 – James’ Story: Don’t Give Up

It’s here! Everyone on the Edge has been a project I’ve wanted to do for a long time. I am so overwhelmed with the response I have had and hope that this series will encourage more of you to open up. It’s an absolute honour to read and share your stories and help people recognise that truly, everyone really is on the Edge.

I’d like to proudly introduce my first guest, James. James is an inspiration to me, we crossed paths almost a year ago now after finding common ground through our struggles. He is the founder of Walk and Talk 4 Men, a group that offers support through regular meet ups in the Essex area. The group encourages men to open up, have a chat and get outside and has been wildly successful. Whilst having spoken honestly about our mental health to each other, this piece includes a story that I wasn’t aware of. It’s brave, honest and raw and encourages us all, not to give up. Thanks James, the floor is yours…

That gut wrenching feeling of disbelief at being back at the same undertakers, at the same crematorium, speaking with the same funeral directors. Like Groundhog Day, we had already done this, just months ago. Once again having to choose another coffin and create another eulogy and choose more funeral music. Why was my family being punished? What had we done to deserve this? The heartache and pain was unbearable, I missed my mum so much and had just spent the previous 6 months grieving her and spiting cancer for taking her away at the young age of 60. But now this, my beautiful nephew, just 10 years old, killed by a brain aneurysm.

I could not comprehend what was happening, so many questions that can never be answered. I didn’t know what to do, how to be or how to act. I didn’t know how to grieve. All I knew was that I wanted the pain to stop, I wanted my old life back, with the two missing key components back in it. My mum Carole and my nephew Jasper. To hear the word “uncle Jamesy” again and to say the words “mum I love you” out loud again. Simple things that I took for granted and miss every single day.

The physical effects came first, dry skin, mouth ulcers, large lumps appeared on my scalp, very painful cyst like lumps. I found that I couldn’t sleep and the little broken sleep I did get I had started to grind my teeth and would wake up with a sore jaw, feeling like I had been punched in the face. My weight fluctuated like a yo-yo, either not eating at all or binging on junk food. 

Alcohol I thought was my friend, it helped me escape my reality, sometimes it even helped me forget for a short time, but it wasn’t my friend at all, it was adding to my depression. Instead of talking about my feelings I’d drown them with drink and I’m ashamed to say drugs.

I was self-destructing and didn’t care, my life was on a downward spiral of despair and self loathing. It’s all still such a blur. I can’t say I wanted to die but I didn’t particularly care about living. My friends knew of my bereavement but had no clue of the extent of my unhappiness because I wouldn’t tell them or show them how I felt. I wore a mask when around them. I felt isolated and alone, ashamed and a burden. I felt like I’d let everyone down including my mum and nephew.

I wore a permanent mask around others, a “brave face” mask. I couldn’t hold down a relationship and I hated my job. My work life became exhausting due to the fact I was constantly putting on the mask everyday which was getting heavier and heavier to carry. I was in a constant dark place, depressed, tired, no aspirations or desires, I wanted to give up. 

One day not long after the second year anniversary of my mum’s passing, I sat at my desk at work and wanted to just pick up the PC monitor and throw it throw out of the window. I clenched my fists and went to pick up the monitor, then I just cried and sat back down and sobbed. I’d finally broken. I couldn’t take anymore, I couldn’t hold in my suppressed feelings anymore. I couldn’t go on like this. I stood up, walked out of that office and went straight to my doctors. I vividly recall how soft and attentive the GP became when I started opening up, and my feelings and thoughts poured out of me as well as the tears. She listened to me, for the first time someone was just listening, not judging or trying to give their opinion. This calmed me down and helped me relax. I was prescribed antidepressants, something I had been avoiding but they helped me get back on track. The doctor was very informative about the meds and the side effects, they also advised on the importance of healthy eating daily and drinking plenty of water.

I started seeing a grief counsellor and discussing my grief, depressive feelings, and my nephew and mother’s deaths. I started taking control of my life. Over time I reduced my alcohol intake and stopped smoking and taking drugs completely and I started talking more. It was difficult especially around my family but gradually became easier. This was the start of my recovery journey, I’m still grieving and I still have down days, but I feel I’m winning. I feel I’m more equipped to deal with tough days when my mental health needs looking after. I now know to avoid alcohol, I now know how important sleep is, as well as healthy eating and exercise. Even if it’s just a walk or a yoga class.

In March 2019 I started a support group for men and their mental health. I called it Walk&Talk4Men. We meet up and talk about our mental fitness and feelings. We meet in country parks, get some fresh air, walk and talk. It’s that simple. By turning my pain into passion I am now actively helping others by giving them a safe, non-judgmental place to talk about their feelings. I’m very proud of this group and the brotherhood it is forming.

In 2019 I became an ambassador for the worlds leading men’s health charity, Movember. My biggest achievement to date, I campaign for helping men live longer with my fellow Mo Bros and Mo Sisters. I am extremely proud of myself and I know that my mum and Jasper would be too.

I still have my off days but feel I’m better equipped to deal with them. I am no longer fighting with my mentality and proactiveness.  I try every day to project positivity, for the first time in years I’m career driven, focussed, determined and living my life.

No matter how bad things are, please don’t give up, you can still bounce back and achieve your dreams. Anything is possible no matter what you’ve been through or going through, things can only improve when you are at rock bottom, there is always light at the end of the tunnel. Keep going – you’ve got this.

James Mace

http://www.walkandtalk4men.com/

If you wish to contribute to Everyone on the Edge, please send your piece along with a picture to ellenontheedge@gmail.com

World Bipolar Day

It’s World Bipolar Day today. The official day of Sunshine and Showers. I’ve written a little bit about what it is, and how it may affect someone you know. I’ve done way to much research into Bipolar over the past year, it really helps me in understanding (or trying to understand) what is going on in my head. You see, bipolar disorder is a confusing condition, especially for someone viewing it from the outside. If you have a friend or relative living with bipolar disorder, this person needs you to understand, do a bit of research. If you don’t know what to do, or are struggling to understand, it will be appreciated so much.

In short, Bipolar disorder is a mental health condition that affects your moods, which can swing from 1 extreme to another. Throwing you from Mania to Depression basically. It used to be known as manic depression.

So let’s start with the “good one”… To outsiders looking in, bipolar mania comes in many forms. During these emotional highs, your friend or relative may become full of energy and overly excited about life. Mania can be mild, moderate, or severe, so you may not always link their happiness and elation with a mood disorder. Sometimes, all you see is a fun, optimistic, and upbeat person — the life of the party. But other times, you may notice erratic behaviors with their joyful mood.

This person may become more talkative, to the point where others can’t get a word in. They may also speak fast, or come off as impulsive and easily distracted. While this may be confusing for you, this can be a great time for people living with bipolar disorder.

Mania isn’t the only symptom of bipolar disorder. Which brings me to the “bad one”. Depression. Someone with Bipolar could be laughing and having a great time one day. And then the next day, they disconnect from the family and isolate themselves for no apparent reason. They may have little to say, become easily irritated, or lose motivation, which can be a difficult time for everyone. The depression episodes are ALL consuming, giving no leeway for any other emotion other than complete emptiness, hopelessness and pure agony. It’s truly terrifying, but does always, have an end.

Despite all the science and formalities behind Bipolar here – there is also “the middle”: The middle is what I imagine it’s like for everyone else — you know, normal people. I wake up in the morning and I feel fine. I don’t dread going about my day. I go to work, get things done, and have plenty of energy throughout the day.

I can roll with the punches the average day gives me. I’m not freaking out over small problems, I enjoy the little things, and I’m not loathing the future.

I feel normal and it’s how I see myself. I’m not some lunatic running around or some mopey, lazy slug.

I honestly wish I could stay in this mindset all the time, and more often than not, I am truly in “the middle” but I’ve sort of accepted that my moods will change on their own, so I enjoy the calm more when it’s there.

It’s really bloody difficult sometimes – I have always personified my Bipolar diagnoses as “Billy” – this means I have a separation. After all, I have taken a long time in trying to not identify myself as Bipolar. I’m Ellen, I just have an illness called Bipolar Disorder. (NOTE TO SELF- Remember that).

Basically, cheers Billy. Despite bringing me so close to the edge I’ve been scared I definitely will fall, I’m sort of glad you have your own celebration. You’re helping me learn a lot more about the world, you’ve given me motivation to get my head out of my arse and learn about things, to learn about all of the things. In truth, you’ve ignited a passion in me for Mental Health. For everyone’s Mental Health. Everyone has one, we just need to make sure we are taking care of it. After all, we really are all in this together.

So, Happy Day of Sunshine and Showers everyone, Happy World Bipolar Day. Give Billy, and everyone you know accommodating Billy, a round of applause, he ain’t all bad.

Hang in there. X