Welcome, Billy.

So, I’m back, I mean, I haven’t really gone anywhere but… I guess, I’ve not really known what to do with myself the last couple of weeks, I have felt a bit dissociated and haven’t been able to write. I have thought quite long and hard about whether to write this, but I fear that if I don’t get it out there, I may not be able to carry on writing. And even more importantly, why the hell shouldn’t I get it out there, some of you need to hear this… so… *takes a deep breath* here goes. Let’s talk about Billy.

Billy has been with me for like… forever. I think he has been around since I was a young child, he kind of quietly sat there, not really making himself known to me, but has always made sure that I have felt things really bloody strongly. I have always been an extremely emotional, expressive and passionate person, and in some ways, I guess I should probably thank Billy for that. He has made sure that I have been through a lot in my short time on earth though, he has made me keep secrets and at times, made sure I am really scared and confused. Billy has made sure I have had bad days, or quite a few bad days, and I now know that he will ensure I will have a LOT of bad days in my future.

Billy has now, made himself known. He isn’t going to go away and he isn’t some phase that I am going to go through. You see, Billy is in my mind, he is sort of a disease I guess. A bit like Diane (Diabetes) is a disease and she affects you physically. Billy affects my brain and is going to continue to be very unpredictable. Fab, ey?

So… Billy Bipolar. Welcome. You fucking asshole. You have made a lot of stuff make sense, but I am unsure of how our relationship is going to pan out. I feel all of the things about you. I guess a sort of relief, a sort of anger, but I know I need to get to know you a lot better, and I definitely need to begin to teach others about your pesky ways. I am attempting to not panic that you are there and I know we have a lot of work to do to ensure that we work together as best as we can. I know we are about to enter a battle, an argument, an absolute relationship test, one that’s going to last forever. Sometimes I know you’re going to make me sleep, sleep for days. Other days, I understand you’re going to make me feel like the best person in the world, like I am untouchable.

There are millions of people who have to accommodate you, Billy. It seems every single day that a celebrity is coming forward, saying how they have struggled with your presence, but have let us all know that you are not all of them, you’re there, but they can still achieve greatness. I think, a couple of weeks ago, I was initially very concerned about your bold presence, about the fact you had made yourself known, and you were never going to go anywhere. You are clearly stubborn, but maybe that’s why you’re such a good match for me. And I hope I can still achieve greatness.

So, for those of you who have heard about Billy in passing, read about someone having him in their life but not really got it (absolute hands up, me too). Let me try and break it down for you, and for me. Let’s try and understand it, as briefly as we can, together.

Bipolar, (lets use Billy’s second name, I know he likes to think he is important), I’d heard of it but wasn’t familiar with it. Bipolar is a mental illness, its thought to be caused by an imbalance in the way brain cells communicate with each other. This imbalance causes extreme mood swings that go way beyond the normal “ups and downs” of everyday life, wildly exaggerating the mood changes that everyone has. People with bipolar can have long or short periods of stability, but tend to then encounter a “low” (deep depression) or a “high” (usually mania or psychosis). Bipolar can also throw people into a “mixed state” whereby symptoms of depression and mania occur at the same time. Fun.

I hear you though… “Everyone is moody! Doesn’t everyone have a form of bipolar disorder?” But listen, unlike bipolar mood swings, moodiness has a trigger that makes sense. And it is in context—a bad day at work, a fight with a boyfriend, moving, or something really sad and sudden such as getting fired, or the death of a loved one. Moodiness can even be the result of a person’s personality. Unlike simple mood swings, each extreme episode of bipolar disorder can last for several weeks (or even longer). Bipolar disorder mood swings, are very different to mood swings. They are often inappropriate or unreasonable responses to triggers, or they may lack any connection to a specific trigger. Bipolar mood swings, moreover, have nothing to do with someone’s personality. The mood swings can get dangerously low, or be unreasonably high or manic. They can show in other ways, as in spending sprees, for example. (Mate the amount of times I have had weeks of several amazon parcels a day being delivered). But they are always episodic with a distinct beginning and end.

Now, whilst people with bipolar tend to swing between depression and mania, there is no “typical” pattern of symptoms. Every person who accommodates Billy, accommodates him differently, and the length of time someone spends at either extreme of mood (high or low) can really vary – it can be days, weeks or months. There can be periods stable or “normal” mood in between episodes, but some can swing from periods of mania to depression quite quickly without a period of stability in the middle. You tired yet?

I will stop boring you now but I think my worst fear, and the reason for this all, I guess, is that when Billy was passed to me officially (when I was diagnosed by my psychiatrist – doesn’t that just sound shit?!), was the fear of ignorance and stigma I may begin to face. It is a big word, but it is just a word isn’t it (hence Billy). It is completely true that I did not and do not have to disclose a health condition that I have to anyone, however… why shouldn’t I. Billy is a part of me, Billy may affect me, affect my behaviour, my emotions or the way I can cope with things, he may cause me to need a bit of time. So people should know. I am continuing to attempt to accept myself living with Billy, and have a long way to go before I am going to be able to not define myself by him. But I hope writing this is the start of it, the start of me living alongside Billy, but not letting him take over.

Despite all of this, despite all the struggles having Billy is going to present me with, I hope there will be moments where I shine, where Billy helps me shine. And in time, when I am more self-aware, my bad days, I am sure, will only amplify the good. I endeavour to learn to appreciate those moments even more because I will fight to get there. I won’t have all the answers all the time, but in time, I hope I will learn what works for me and what doesn’t. It will be a struggle, but if I wasn’t a fighter, I wouldn’t be here now.

So here it is, I know now, you know now. Please ask questions, I’m asking them too, please be inquisitive, I am too. Please talk to me if you accommodate Billy, or know someone who does. It kind of makes me feel less lonely. I am trying to learn about all of this, I feel like it’s the way I’m going to get through it at the moment. Please do, join me, welcome Billy. But more than anything, know I am still Ellen, I always have been. It’s just going to take me a bit of time to get used to this.

Hang in there.

Ellen on the Edge xx

An Open Letter to Dr Willis

Dear Dr Willis,

I had an appointment at my GP surgery around a month ago, with yourself. It had taken me 4 weeks and 2 desperate phone calls to get the appointment where I saw you. I had made a phone call 5 weeks before my booked appointment and I advised that I felt very unwell, was experiencing symptoms that were causing me to worry for my safety and felt I needed support and an appointment sooner than 5 weeks. I needed to be seen that day. I was advised that “the best (they) could do, (was to) move my appointment to the following Wednesday”, now please bare in mind I had made this phone call on a Tuesday, and had already put the phone call off for 3 days in fear I was wasting everyones time. But alas, please know, I do not place the blame with you, I waited, and I want to give you context. I got worse, before getting slightly better, I felt let down by a system that had literally told me to call if I needed them, I did not wish to sit in A&E and my appointment with yourself the following Wednesday, did eventually come round. I had been keeping a mood diary for the previous 2 weeks in hope this may add weight and sustenance to my case of desperation. I sat in the waiting room clutching it with anticipation.

You were 25 minutes late for our appointment, something which I, again, am not placing blame for, and am incredibly aware of how stretched you are, but I hope you acknowledge. You wore a red waistcoat and purple bow tie. I hope you don’t mind me making reference to your age, but you are a well aged man, and I had initial reservations on first impressions that we may not have a lot in common.

It was, for the most part, Dr Willis, a really positive appointment, I thank you for listening to me, taking me very seriously, referencing my maturity and am so thankful to you for referring me to a psychiatrist. We discussed my medication and you suggestion these were upped. You were really helpful and on board. This letter however, is referencing the last 7 minutes of the appointment. Just as I got up to leave you stopped me “can I ask you something personal?” you questioned; “Could you lose a bit of weight, can I weigh you?” I said to you that I could lose weight and that I have lost a stone and a half in the last 3 months. This didn’t seem to matter to you however, you ignored the comment, proceeded to weigh me and show me my BMI on your computer, to which I replied throughout that I was aware of my exact BMI, having become a little obsessive over my weight recently. You again ignored this and proceeded to reference my weight. I did ask you what my BMI really had to do with my mental health, I exercise regularly, and have lost a significant amount of weight. I was also quick to point out that you should be careful making assumptions, one of my self harm techniques/struggles is that I just stop eating, I didn’t eat for 2 weeks a few months ago. Your response to this was a simple raise of your eyebrow. You persisted to start sentences with “if you were slim…”, I apologise if at this point I became a little blunt in my tone as I posed back to you how you thought that being your version of “slim” would positively effect my severe MH issues. You didn’t respond to this and instead said I should just think about it. I walked out your door, thanking you for your time.

I am writing you this letter because I really want you to know that I did take your advise, I thought about it, I am thinking about it. All the time. I left your appointment feeling distraught, distraught that an appointment that I had been waiting so long for turned into a discussion about my appearance. If I had come to you advising that my weight was negatively affecting my mental health I would understand, but I still don’t. And the fact I was honest in advising that unfortunately I tend to stop eating at times, which I really felt you ignored, left me in complete shock. Can I please ask that you brush up on your knowledge of eating disorders, of anorexia, of the fact that it doesn’t matter your size, it’s a disease of the brain. And can I please tell you that if it were someone else sitting in front of you who was struggling to the point of breaking, you could have tipped them over the edge. Now, I appreciate that it is your role to advocate a healthy lifestyle, you’re a doctor, but what I need you to know is how negatively that very judgemental and ridiculous 7 minutes tore me down. I will see a psychiatrist and continue to seek help for my mental health, but you must acknowledge that a comment like that could cause someone else to never ever want to seek help again. That someone could have been building up for months to seek help, it could have been such a big moment, and ending an appointment like that, could potentially end someone’s road to recovery.

Please know that I have ignored you eventually, that I have risen above your comments, and unfortunately marked you as an old fashioned doctor who I will decline to see again.

I sincerely hope, Doctor, that you are never faced with a period of poor mental health. And that if you are, the medical professionals you see, offer you compassion, respect and listen to everything you’re saying offering impartial and non-judgemental treatment and support. Everyone deserves that.

I want to thank you for your referral letter and let you know that on my recent holiday to Jamaica, I put on just under a stone.

Kind regards Dr Willis, and hang in there.

Ellen on the Edge